May is Cystic Fibrosis Awareness Month!

Of all the incredible partnerships IST has had over the years, none is as personally inspiring to me as our journey towards a cure with the Cystic Fibrosis Foundation. These days, when I speak with our CF Ambassador's mom, Jennifer Stasney, the joy and success radiating throughout her family, especially in Blake Jones's life, is truly inspiring. With his health at an all-time high, Blake is graduating from high school this year, was recently crowned Prom King, and enjoys playing lots of tennis. 

But there are still so many families like these who are fighting for every breath, every moment of joy, and every chance at a normal life. That's why I'm asking you to join me in this critical mission. We need your help to spread the word and make a contribution to continue funding research, advocating for policy changes, and providing support to families affected by cystic fibrosis. 

Episode 37 of IST’s Outside-IN Podcast: “Adding Tomorrows: Why IST is Passionate about Cystic Fibrosis Awareness” 

This special edition episode of Outside-IN is a bit different than IST’s normal content. Below are a few key takeaways from our discussion. 

Cystic Fibrosis is a hereditary disease. Blake inherited two copies of the Delta F508 mutation, the most common type of CF. It impacts the lungs by causing thick and sticky mucus to clog the airways, making breathing difficult. At the most challenging points of Blake's childhood, he needed daily breathing exercises, treatments, and a vibrating vest that would keep him stationary. The vest simulates a cough through vibration, aiding the body to break up the mucus and clear the breathing pathways. Thanks to the development of new medications in the last five years, Blake requires much less regular medical attention and lives a "normal" life. 

How You Can Help 

Attend a local Great Strides Walk! Last weekend, I enjoyed walking and handing out treats at the IST's Kids Fun Zone set up at the Great Strides Atlanta Cystic Fibrosis Fundraising Walk in Suwanee, GA! 

Every dollar we raise makes a difference. It funds breakthroughs like Trikafta, a "miracle drug" that has transformed Blake's life. We're halfway to our goal of $30,000, and every donation counts. Whether you can spare an hour of your time or a few dollars, your contribution will bring us closer to our mission. 

Let's work together to add more tomorrows for Blake, Jennifer, and countless others who are counting on us!